Update on Grace

Okay...I have been very neglectful in my blogging...it seems that when Grace goes to bed at 9 p.m., I want to catch up on my DVR'ed TV. So, last Thursday we finally met with one of the surgeons. Can I say how lucky we are to have these surgeons...they rock! Okay so here is the low down...they have to go in and repair the two holes in her heart (one in the pumping and one in the collecting chamber). They also have to repair the one shared valve and make it two valves. That will take care of the ASVD part. Then they have to build a conduit from the heart to the lungs. This will help her be less blue. She will most likely have to have surgery again when she gets older to replace that conduit. The surgery will be on Friday around 9 a.m. We have to check in on Thursday around 1 p.m. to do all the testing and pre-op stuff. The surgery will take about 4 hours and we will be in the hospital for about a week.

Today Grace learned how to use a straw. She was so proud of herself. There's something new every day. The other day she realized she had peripheral vision. She thought that was cool when I would pop in and out of her view without looking directly at me.