Saturday, August 20, 2011

I believe in miracles!

I always knew my girl was a miracle girl...first even making it 18 months in China without surgical intervention.  Then on July 14, 2011, when she suffered heart failure, we almost lost her, but the awesome medical team at Santa Rosa gave her the medical intervention she needed so she could survive. But yesterday was probably, in my opinion, the one that just blows my mind.  Yesterday, we were holding our breaths because the doctor was going to do a risky procedure in the cath lab to save her life by busting and sucking up the large blood clots around her Fontan and her pulmonary artery.  When he went to do pictures before he actually began the procedure he found nothing...NO CLOTS! He double checked, triple checked...no clots!  It could be argued that the CT scan that showed this clot was seriously wrong but I like to think it was a miracle...the power of God and the many prayers...I am so awed by my God and so thankful to him and all her prayed for us.  I am eternally grateful.  The other great thing is that they think they know why Gracie's sats were off...high pulmonary pressure in lungs...found that nitrous works and they think they have found a medicine that will work like the nitrous...which means maybe no o2 for her when we go home.  We probably have about a week here.  My students come back next week but my supportive and fantastic principal is closing the library next week so I can be here with my sweet girl.  We are still in PICU but we hope to transition to IMC (intermediate care) unit later in the week.  Thank you all for your thoughts and prayers.  Keep them coming as she recovers and starts this new medicine.  I hope that it does what she needs it to and gives her the extra boost to recover from the heart failure and allow her to be a 3 1/2 year old little girl.

3 comments:

Debbie Sauer said...

Terrific!! An answered prayer. Please keep us informed as to her progress. Blessings

HuluMama said...

Wonderful news!!!

Tracey said...

Still thinking of you and praying for you. Whitney's new brother, Andrey, has a relatively "minor" heart condition. Thinking of you and Gracie during all the testing and appointments has helped me to find courage and strength. Even though we've never met, your story is powerful to me. All the best to both of you.