Tuesday, May 25, 2010

Big Shock

Today started out a great day. My school got "Recognized" status and my principal said we could paint our office. Then I get a phone call from Gracie's physical therapist. She had written a letter to the pedi cardiologist about Gracie's o2 sats falling during physical stuff. We have been keeping a log since that started two weeks ago. Anyways, to make a long story short, the pedi cardiologist is very concerned and it looks like we might be having part 2 of open heart surgery this summer and not next summer as planned. We have to get a sedated echo and then they are going to do the cath lab. Yes, I am totally freaked out and I feel as if the rug has been pulled out from underneath me. I was preparing myself for summer of hell for next summer, not this summer. I truly had hoped that she would get a little break but it doesn't look like it. I'm scared because I know this next surgery is a lot tougher and we're going to be hospitalized most likely a longer time than last (we were there 9 long days!) I have mixed emotions: get it over with so she'll feel better and her sats will be in the 90s; give her a year to not have so much trauma...she's had a lot in this one year. In 13 days, we will have been a family for a year! I can't believe it. We took pictures this weekend and I will post them from work because it has the CD capability that my netbook doesn't have (and frankly I don't want to turn on the other computer because it takes forever). On Monday, we will be doing a photo shoot for Mended Little Hearts calendar (ironic huh?) I will be talking to some of the moms whose children went through the surgery that Gracie will have to go through. I guess I'm just scared and overwhelmed and surprised. Life is like that and you have to take it as it comes and pray a lot. I do have faith and I know that there is a reason for everything. The good thing is that if we do have surgery, the timing is great...I'm off of work in 15 days.


Luna said...

Jamie, you and Grace are both in my prayers. I can't believe it's almost been a year since we were in China getting our girls. Poor little Grace has had to go through so much since then...You both have. Thinking of you both. ((Hugs))