Tuesday, May 25, 2010

Big Shock
















Today started out a great day. My school got "Recognized" status and my principal said we could paint our office. Then I get a phone call from Gracie's physical therapist. She had written a letter to the pedi cardiologist about Gracie's o2 sats falling during physical stuff. We have been keeping a log since that started two weeks ago. Anyways, to make a long story short, the pedi cardiologist is very concerned and it looks like we might be having part 2 of open heart surgery this summer and not next summer as planned. We have to get a sedated echo and then they are going to do the cath lab. Yes, I am totally freaked out and I feel as if the rug has been pulled out from underneath me. I was preparing myself for summer of hell for next summer, not this summer. I truly had hoped that she would get a little break but it doesn't look like it. I'm scared because I know this next surgery is a lot tougher and we're going to be hospitalized most likely a longer time than last (we were there 9 long days!) I have mixed emotions: get it over with so she'll feel better and her sats will be in the 90s; give her a year to not have so much trauma...she's had a lot in this one year. In 13 days, we will have been a family for a year! I can't believe it. We took pictures this weekend and I will post them from work because it has the CD capability that my netbook doesn't have (and frankly I don't want to turn on the other computer because it takes forever). On Monday, we will be doing a photo shoot for Mended Little Hearts calendar (ironic huh?) I will be talking to some of the moms whose children went through the surgery that Gracie will have to go through. I guess I'm just scared and overwhelmed and surprised. Life is like that and you have to take it as it comes and pray a lot. I do have faith and I know that there is a reason for everything. The good thing is that if we do have surgery, the timing is great...I'm off of work in 15 days.

1 comments:

Luna said...

Jamie, you and Grace are both in my prayers. I can't believe it's almost been a year since we were in China getting our girls. Poor little Grace has had to go through so much since then...You both have. Thinking of you both. ((Hugs))