We survived our first Gracie & Mama trip. Right before Thanksgiving, we went to Disneyworld. We had a great time but I discovered that Gracie wasn't quite ready for the experience...she loved the characters but the rides left a little to be desired. She did love the two Toy Story based rides because they were interactive. She HATED "It's a Small World"...the dolls freaked her out a bit. She got sick...like she was blue on Thanksgiving. Her oxygen sat levels were okay...not the best but okay. I took her to visit our friend who is a PICU doctor the next day and they thought she looked okay. But we are now doing oxygen at night every other night. We had a nice holiday but I noticed that schedules really help her behavior (either that or the idea of being on Santa's naughty list is motivating her)...she was really mean during the rest of the week we were home together during Thanksgiving break.
She has discovered roller skating (via physical therapy)...she LOVES it. She can skate better than I can. She's asked Santa for skates and elbow and knee pads for Christmas. We also got an Elf (Elf on a shelf) which Gracie named Cookie. He seems to be a good bad behavior deterrant.
We are getting ready for her birthday party on the 17th of December. It's our first big party with friends. It should be an interesting experience. I think I have the goody bags together. I need to get the snacks, cupcakes, and ice cream cups and drinks. Then I'll be ready to go.
We have a mended little hearts Christmas party tonight. She'll be styling and profiling. I had to get new black mary janes which led me to discover that all of her shoes were too small and her toes were curling up. It would have been nice if she had told me. I didn't know because she dresses herself and puts on her own shoes.
Thursday, December 08, 2011
Catching Up
Posted by Jamie at 1:33 PM
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