Sunday, July 03, 2011

Sesame Place & Surgery

Gracie, my mom and I went to Sesame Place near Philadelphia courtesy of Make a Wish.  We went right before Gracie had her surgery.  It was a blessing because during our tougher days after the surgery, we would try to talk about the trip.  I have pictures which I will post later  I have just been soo exhausted because of the surgery.

The Fontan was rough.  I don't know if it was harder this time because she was older or because I really knew her and knew how much pain and how scared she was.  It was an emotional roller coaster.  No big, scary moments like the first surgery where they had to bag her.  She got a feeding tube this time because she couldn't keep anything down.  We were also in the hospital longer because of the fluid coming from the chest drains was more than they wanted.  We had a scare yesterday when her fever kept spiking when the motrin was wearing off.  She had a rough night and we took her back this morning.  I really thought the doctor would keep us but he trusts me and so he took off one stitch in an incision that was bothering her and put her on an antibiotic.  She is doing better watching her new favorite, Snow White.  She discovered that in our 14 day hospital stay.  Ask me how many times I've seen it?  Like a zillion. But, it makes my girl happy when she's uncomfortable and that is my priority for her as she heals.  I'm hoping we'll continue with this positive progress but we are not out of the woods yet.  Keep those prayers coming.  We appreciate it and thank you.  Prayer is incredibly powerful and it has helped us through these rough couple of weeks.